An all-day fundraising event for a little boy from Cashel was a huge success, and his grateful parents want to extend thier thanks to everyone who supported the event.
On June 5 friends of Ellen O’Brien and Mark Moloney held a darts tournament to raise funds to help their son Lee.
Lee, who will be two in August, was born with a genetic condition so rare that doctors are still struggling to discover exactly what it is. The condition affects Lee severely, leaving him blind and in need of constant medical care. Yet Ellen says when he is happy he has the heartiest laugh.
Speaking to The Nationalist this week Ellen extended her thanks to everyone involved in the fundraising. She said the funds raised will help pay for therapeutic treatment like an osteopath, which Lee attends every two weeks and which he finds beneficial.
Lee also has to attend Temple Street Children’s Hospital on a regular basis and he is constantly in and out to South Tipperary General Hospital. Last March he was very sick but the brave little boy pulled through.
Doctors have described his condition as ‘microgenetic’ and this month his case will be presented to an international conference of geneticists in Belfast.
The family live at Castlegreen Crescent in Cashel - Ellen, Mark, Lee and big brother Anthony, who is nearly six.
The darts tournament took place in Brosnan’s Bar on June 5 and was an all day event with food, music and raffle draws.
Ellen and Mark would like to thank all those involved, especially Liam, Josie and Denise Butler for organising the main event, to Elaine Moloney for organising the raffles, to all the darts teams who took part, to Brosnans’s Bar for hosting the event, to the Cashel Palace for food, to Paddy O’Brien for the music, to all those who donated a spot prize for the raffle, sold a ticket or bought a ticket.
“We would also like to thank all our friends and family for their help and support around the event and every day,” Ellen said.
“It was a great day and we appreciate it so much. It is so overwhelming to think that so many people who don’t even know us would get involved. The money raised from last year has made a huge difference to Lee’s life and please God it will do the same again for him this year.”